Having endured the insidious symptoms of Sjogrens for over a year, I have come to learn something very important when it comes to loved ones who worry about us. In my life it is my husband who witnesses my daily struggles and pains. The other day I looked into his eyes and what I witnessed was weariness and worry. It occurred to me then that whether I liked it or not, it was up to me to set the tone in my household to allow my loved ones the freedom to laugh and simply be themselves, even in the presence of my pain.
The most valuable personal experience I can offer here is that my attitude toward my illness has a direct, immediate impact on those I love. So, I have started to introduce as much humor as I can when with loved ones to, in essence, give them permission to enjoy life and life with me even while living with this very difficult diagnosis.