I have an appointment with a Neurologist…April 5th…my 20th anniversary. I am SOOOO hoping that brings good news for me!!
I had my bi-annual eye dilation for my Pars Planitis (Uveitis) today. While there are no changes (YAY) I am showing signs of inflammation (highly light sensitive today) so I am to start a steroid eye drop & an OTC eye drop. I also officially have dry eyes now. When I was first dx with SJS I presented with severe dry mouth, fatigue & pain. My Optometrist did a tear test on me today and she said my tear film was extremely thin. Eye Dr wants me to start fish oil after my surgery on 3/23 (for dry eyes) because it can thin some people’s blood. And I was told today that some of my vision symptoms are neurological as well.
Please forgive my ignorance, but is developing a new symptom of SJS after you are already dx an indication that SJS is progressing? I will be dx 1 year next month and TBH, I feel like this disease has TOTALLY taken over my body!! I feel like I have been hit extremely hard really fast?!?!? This MIGHT be in part due to the poor medical care I have been receiving from my original rheumy!
Well, that’s about it for now.
Hope you all have a great evening!