For about 3 or 4 months now, I've had this weird "twitching" or "jerking" as I can best describe it. If I'm sitting down and watching tv or playing on the computer, or reading, etc my leg or arm will suddenly twitch and jerk a little on its own. It happens randomly, but very frequently. I've posted about this before, but it's been getting worse. Now my feet and sometimes even my shoulder or head will do it. And sometimes I feel a slight stinging sensation when it happens, almost like a small electric current going through my arm. It's not really painful, but very annoying and I have to admit it's scaring me.
I was diagnosed with Sjogren's in October. Since then, I've been on Plaquenil and Pilocarpine. It does seem to be helping, and I don't get as completely tired as I used to. I still get tired sometimes and have a bad day now and then when I don't feel great, but at least now I am able to have a life and I'm not tired all the time. My thinking has also gotten sharper and my memory seems to be a little better.
This twitching thing is kind of worrying me though. The last time I went to my doctor, she was testing my reflexes...you know, where they tap you with that little hammer. She tested several parts on my legs, arms, and feet, and she remarked that I was "hyper." She explained that I had hyper-reflexia, but isn't sure yet what is causing it. Apparently, hyperreflexia is where your reflexes are more sensitive than they're supposed to be, and might mean something is going on with the nerves. She ordered blood tests and is going to refer me to a neurologist. I had the blood drawn, but I haven't been back to the doctor yet. My next appointment is in a week, on December 15.
My rheumatologist doesn't think the twitching is related to the Sjogren's, but I think it has to be. I have never had this problem before, not until all these other symptoms started. He keeps saying that it is from anxiety. I have liked the rheumatologist up to this point, but now he is starting to frustrate me, sounding like all the other doctors who try to dismiss EVERYTHING as being due to "anxiety"! (Why do doctors always do that now?!) At least he does acknowledge that I have this disease and is giving me medicine for it. And he's ordering blood tests too.
Has anyone else here had this weird twitching or jerking problem, or had a doctor tell you that you had hyperreflexia?
Sorry this is so long. One other really weird thing that has happened to me a couple of times is that I've woken up from a dream in the middle of the night and felt my arms or legs moving and kicking. One time, I woke up and felt myself hitting the window with my hand, like I was trying to reach for something or hitting something! I woke up and it took me a couple of seconds to realize what I had done, and I was thinking "What in the world?!" Another time, I vaguely remember feeling my leg kicking. I woke up early in the morning because I heard what sounded like glass. My bed is right next to a window, and I woke up to find that the window was broken! At the time, I assumed that the wind had blown a branch into the window and broken it (we do get really strong winds here in the fall and winter). But now, I'm wondering if I broke it during my sleep!
What the heck is happening to me?! Has anyone else had anything like this?