Hi all. I was diagnosed in May with SS. This came as a result of loosing my saliva literally overnight between Christmas and New Year. I had had two teeth removed three days before Christmas and thought to start with they had hit a nerve or something causing this to happen. I have a great oral surgeon and she suspected straight away SS. I had bloods witch showed connective tissue antibodies, then I had an MRI and lip biopsy witch confirmed the SS.
I am at the moment taking Pilocarpine, (this is the only med available in NZ for dry mouth). I have tried it in oral solution and am currently taking it in a nasal spray. I get a sudden rush of saliva but this only last for about an hr. I have tried sprays and gels, but these seem to make me dryer.
I have constant fatigue and muscle aches at the moment. Going to GP in the morning, hopefully get a referral to a Rheumatologist, as I haven't seen one yet. Looking back I have had symptoms for years, but I think my GP just thought I was a hypochondriac. Two years ago I had a hysterectomy, I came out of theatre with aspiration pneumonia, then got an infection in my wound. During my second 6 day hospital stay my liver function levels went seriously high.
Sorry to go on. I have struggled with my weight for the last few years, suddenly in the last two weeks I have lost 6kg, is this normal. And other symptoms can I expect.
Any replies will be grateful.