Hi everyone. My name is Tina and I am some what new here. I have a few questions that I would like to ask and I hope that they haven't been asked before. First of all, I was fighting dry mouth for over a year. A year ago, my dr thought it was thrush and put me on Diflucan, which didn't help. Then he tried an antibiotic which also didn't help. I went a week totally pain free and I thought that whatever I had was gone. I wasn't so lucky. The dry mouth came back, the burning tongue was back, so back on Diflucan I went. It still didn't do anything. This was about 4 months of treatment. Finally he sent me to the ENT who put me on Salagen 7.5 mg twice daily. Oh I was in heaven when I started taking the Salagen. It worked for about a month, and then all the pain came back. I called the ENT's office and they told me to take an extra pill in the afternoon. So far, it has done nothing. My mouth hurts so bad. I used to love eating spicy foods, but now I can't eat them. Even if it is very very mild, there is no way. Even crispy foods make my mouth hurt. The ENT said for me not to drink as much water as I was, because it is to thick. So I have been having slushies, not good for my weight problem, but the cold helps. I have an appt to see the ENT Aug 5th and he mentioned about doing the lip biopsy. Has anyone went through that and how painful is it? I just want to get rid of this dry mouth.
I also suffer from Fibro and 3 ruptured disks in my lower back. Do to that, I can not walk and have to use a wheel chair. I'm bed ridden and tired of that. I can't find a neurosurgeon to do my back surgery. They all say that I am "to fat and would die on the table". But yet I am expected to exercise by walking or using my stationary bicycle. I can't do either.
Oh another question that I have, is on oral care. I can't find a toothpaste to use that doesn't make my mouth go into horrid pain. I've even tried baking soda and peroxide. Just to much pain. Any ideas would be wonderful.