Hello. I'm new here so I apologize is this topic has already been discussed. I searched and didn't see it.
My mom has been battling Sjogrens for years. It was going on a long time, perhaps even in her early adulthood but diagnosis only occurred a few years ago in her 70s.
The dry mouth has caused her teeth to crumble, even with perfect hygiene practices. Two have broken off and her dentist says they need to ALL come out!! And he wants to take the whole top row off at the same time. And leave the bottom ones for later.
I am SO concerned about this...
Can Sjogrens patients even wear dentures if they have the "worst case scenario" no saliva to lubricate the dentures?
She has a hard time healing anyway, and has lost SO much weight being unable to eat and function well. She is also on prednisone, and I read that impedes healing too.
To make it even more questionable, she has Trigeminal Nerve pain.
Has anyone ever undergone extraction and had implants or dentures with trigeminal neuralgia?
The rheumatologist doesn't seem to want to communicate with the dentist, and the PCP doesn't seem to communicate anything to the rheumatologist, even after we urge them to. I find myself making phone calls and getting nowhere on the "collaboration" front. It's like they all live in their own bubbles and no one wants to comment on the other's profession. But having oral surgery is so BIG, and interrelated to so many other things, and I'm so unsure about what is going to be the implications of this. I keep wondering if the dentist really knows what he's doing?
Thanks for hearing. any good experience, or any lessons and tips from someone who has gone before -- I'd love to hear!