Feeling down and afraid. For the past few months I have had more diagnosis added onto the many I already have. Just this week my cardiologist said he is 70% sure I have a heart blockage. The test also revealed that I have aortic and mitral valve regurgitation and mild tricuspid valve regurgitation. The cardiologist was very impersonal and I was in shock, so the visit didn't go well because I couldn't think of any questions to ask at the time.
Just when I thought I could deal with what I already have I get more bad news. My doctors do not talk to one another which makes for a dangerous situation. The left hand never knows what the right hand is doing. I thought I was building a good team but at this time I do not believe so. Since my diagnosis in 2013, I have not met a single rheumatologist who believes Sjogrens is more than just dry eyes and dry mouth. They have said so which is disheartening. I am on my third rheumatologist and throughout this journey so far, I've learned that some rheumatologists have their pick of diseases that they believe are severe. It's clear when you look around the office and their websites and see no literature or mention of Sjogrens Syndrome.
I will not give up looking. Thanks for listening!