Hi, everyone! After being ill with an array of symptoms for around five years, I was finally diagnosed with sjogren's on September 2015. I had no idea what the disease was about and felt overwhelmed initially. I have many manifestations of sjogren's but the worst fo me have been the never ending fatigue and pain. I push myself to stay active in order to preserve a little normality. I believe that being positive and enjoying every little thing that I can will allow me to have quality of life.
This is a life changing disease, but it is not the end of life. It is very difficult indeed, but that is life, and life is always precious.
I have found that this disease has open my mind to appreciate the important aspects of life. I have learned to let go of what is not important. I have grown to be more spiritual. My life goals have changed, my daily activities have changed. the most important thing is that I live a good life, not an ideal one, but a good one.
I have learned to manage expectations, my own and the expectations of others. I have learned to balance other people's opinion and to be less judgemental.
Sjogren's has brought challenges, struggle and pain into my life, but along with those, it has brought me a spiritual awakening because it taught me to work things out from the inside. I am not afraid.
I am happy to join this group. Blessings!