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Sjogren's Syndrome Support

Let’s say hello to one of our newest members- Vickie from Florida!


#1

@Vickieh

Hi there, Vickie

Welcome to Sjogren’s Syndrome Support.

I am so sorry to hear that your diagnosis is hindering your quality of life. It sounds like you are dealing with an increase in Sjogren’s symptoms, which can be incredibly frustrating and discouraging. Whether you are looking for a platform to share your story or new information about controlling uncomfortable side effects- I hope we can help you find the information you are looking for.

I can see that you have already posted in the community, which is wonderful! I always encourage new members to create their own discussion posts by clicking the + New Topic tab. This is a great way to share your story, ask new questions, and connect with others.

How are you feeling today?

Danielle


#2

Very fatigued. I started having the fatigue yesterday and it got worse today.


#3

Sorry you been feeling worst. I am also felling worst everyday. Lots of headache and pain in my left elbow radiating pain in my hand and numb fingers.


#4

Hi Vickie,

I am so sorry to hear that you are dealing with such awful fatigue. Do you have an appointment scheduled with your doctor in the near future? Have you mentioned this to your doctor in the past?

Danielle


#5

Hi Chiquita,

Your headaches and pain sound just awful. Has your doctor recommended any new medications to reduce your discomfort?

Danielle


#6

Yes naproxen is the new med


#7

Any improvement with naproxen? How are you feeling this week?

Danielle


#8

Yes has help a little. Thanks


#9

The fatigue can be awful. Mine has gotten better in general. Now it hits more like a flair up…now everyone knows when I am flailing because its the only time I can sleep during the day.
I hope you find things over time that work for you to help with that.