Hi everyone ! Yes I have restless leg syndrome, why wouldn't I , I get everything ;0) Here's what I can tell you about it, at least with myself:
1. I have had this for well over 15 years or so but never connected it to anything. It makes your legs feel that if they don't move you will go nuts. When my sons were younger we had a mini-van, on long trips it was like we were playing musical chairs since I had to change seats with someone at least every hour. This was just so my legs got some kind of movement, they all thought I was nuts !
2.About 8 years ago I had a sleep study done for chronic insomnia and ended up with three diagnosis from that. The first was sleep interrupted insomnia. I had zero episodes of REM sleep and never got into a stage 2 sleep( a very light sleep) for more than 20 minutes before I woke up. I expected that b/c I knew I never slept ! The other two were Restless Legs Syndrome(RLS) and Periodic Limb Movement disorder( PLM). The sleep study is video taped and the movement disorders are noted at that time.
3. For treatment I see a sleep neurologist every 6 months. It was a trial and error as far as the treatments, but the study did show behavior therapy( turning off light emitting sources, cool room, standard sleep time, etc.) alone was not going to work. I was put on numerous meds to find the best mix for me. Currently I take Requip 0.5 mg in the afternoon, then 1.5 mg an hour before bed. Also clonazepam 2mg at bedtime. They give me 6-7 hours of heavenly sleep ! If I forget the afternoon Requip, by 7PM I literally can't sit since moving around helps the symptoms of RLS.
4. I get my iron levels checked ( iron and TIBC) every six months. If either is low I get iron injections monthly,the iron works amazingly well. Luckily in the past year my iron levels have been holding steady.
5. There are meds that can cause the RLS to be worse, anything that decreases dopamine levels. I learned that the hard way at the movies. I was ordered a med by my GI ( can't recall the name?!) to increase peristalsis in my intestines, turns out it's a dopamine antagonist, so it was knocking out the effects of the Requip. It the first and only time I took that med, as my neuro said it was like shooting myself in the foot and head at the same time :0(
6. Anything that involves sitting for a long time will cause the cramping, jumpy feeling to occur. I find that if my legs are cold it will increase the symptoms also. It's not fun but very treatable.
So that's my version of RLS. Some doctors will diagnose by symptoms alone, not all need a sleep study. The medication Requip has saved me from going nutty so many times. I am currently on 14 different meds(ugh), take away any of them and I can tolerate it, but NEVER mess with my Requip !!
Enjoy the beautiful day, I hope wherever you live it's warm and sunny!