Hi there, Debbie
Welcome to Sjogren’s Syndrome Support. We are happy you found us here at Ben’s Friends!
Thank-you for providing us with a snapshot of your story. It is clear that you have been through so much. I am so sorry that you have dealt with such unbearable discomfort. How awful. It sounds like you have received some answers but are awaiting more which will hopefully come in the near future. Do you have an eye specialist appointment booked? How are you feeling about your upcoming lip biopsy?
If you have looked around the site you might have discovered the search icon (magnifying glass, top right). This is what I use to browse through existing topics. You can also create your own threads by clicking + New Topic tab. This is a great way to ask new questions, share your story, and connect with others.
As always, we are here if you have any questions or concerns.
Hope to hear from you soon,