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Sjogren's Syndrome Support

Chokin' on the Chicken

the other night my daughter's boy friend was eating over and none oof us had had a home cooked meal for quite a while. So I dug deep for some energy and made baby potatoes, acorn squash and chicken cutlets in herbs.

I cut my first bite of chicken. Put it in my mouth. ....and chewed. And chewed . and chewed. And no matter what I did I could not get that chicken down into my esophagus. I finally had to spit it out iinto a napkiln. Next I tried the potatoes. Nope. NO luck there either. The ONLY thing I could eat was acorn squash cooked in butter and brown sugar. What a disappointment! My swallowing seems to be getting worse and worse. As is my vision. I'm going in October to have a yearly complete eye exam. I feel like my vision has gotten worse and worse. I am feeling like the glaucoma is progressing. And my RA and PsA are both merrily kicking my butt as well. I'm on steroids for those now in addtion to a biologic pill for PsA which I have to stay on for 3 months before we can determine whether or not it is helping.

I'm tired of all of this...at night my legs go on fire with nerve pain.. My thighs are numb but at the same time burning up with pain like hot acid being poured on them. I cannot sleep in any position. and it only seems to be at night. Im tired and Im tired of being in too much pain to sleep. I'm seeing a new psychologist on the 30th. I'm afraid to really tell her how I'm feeling for fear that she willl slap me into a hospital to deal with the depression. It's NOT depression. It's being sick and tired of being sick and tired. It's situational depression. And I'm already taking the best antidepressant I've ever been on. She really can't do anything but refill my meds and listen to me whine.

Sorry for dumping my discouragement on you. I'm tired as heck of being sick and in pain.

I

I think we all know how you feel to some extent and we all reach our low points from time to time.

Swallowing has become a major issue for me lately too. I'm the only one I know who has to chew a baked potato and still has problems swallowing it. Have you had an endoscopy or any motility testing? I'm scheduled for an endoscopy on Wednesday and the GI doc says he'll do motility studies after that.

I'm sorry that you're feeling this way right now. Let's hope your new psychologist will be better than you anticipate.

Liz

I'll tell you, that's miserable when you go to all of that work and cannot swallow the food! Chicken can be a tough one, so can cake, crackers, cookies, rice...the list goes on!

I have been craving comfort foods, and friend chicken, mashed potatoes and gravy are calling my name, but unless someone else feels like making it, I'll not be having it!

I know how you feel, you can really get fed up, get blue, we run through the spectrum of emotions, before landing somewhere near the new normal?

I feel for you sister!

I spoke too soon about the pain in my thigh leaving. It has returned. So I guess I should thank God for the two days' reprieve and move on. I want to apologize for always talking about me and my situation. I want you to know i am literally feeling for you. I don't know how we compare in our pain but I know you are in some terrrible awfull horrible no good pain and I hurt for you and with you.



SK said:

I'll tell you, that's miserable when you go to all of that work and cannot swallow the food! Chicken can be a tough one, so can cake, crackers, cookies, rice...the list goes on!

I have been craving comfort foods, and friend chicken, mashed potatoes and gravy are calling my name, but unless someone else feels like making it, I'll not be having it!

I know how you feel, you can really get fed up, get blue, we run through the spectrum of emotions, before landing somewhere near the new normal?

I feel for you sister!

Sometimes I feel like creating a T-shirt that says, "Gravy is my friend".....sometimes it can be very frustrating to try to enjoy something that was once a favorite, like a tuna sandwich for me, and end up hacking around like a cat with a furball. I feel for you! I think we all do.

Do you take an antidepressant at night, though? I am finding that it helps with muscle spasms and pain.