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Beth from Colorado has joined us- Welcome to the community!


#1

@Beth23

Hi there, Beth

Welcome to Sjogren’s Syndrome Support.

I understand that you were diagnosed with Sjogrens following a blood test in 2015. I can see that you are not currently relying on any medications. How are you feeling overall? Are your symptoms under control?

Please do not hesitate to create your own discussion posts by clicking the + New Topic tab.

We are looking forward to getting to know you better!

Danielle


#2

Danielle,

Thanks for reaching out. That’s so thoughtful of you!

I’m not currently on meds for SS, and I’m waiting to get an appointment with a specialist. My doctor blood tests for everything under the sun 3 years ago and they came back positive for SS. At the time, I didn’t have dry eye or dry mouth so he said I didn’t have SS and I went about my life. This last winter I ended up in the doctor’s office because I have severe hip pain. They did an MRI and it came back with inflammation in the joint. When I asked the doctor (an orthopedist) why that would happen, she reminded me I had SS. That’s when I started researching the disease. I had no idea what auto-immune diseases really were or how they could impact your life and health. I’m learning a lot on the forum and it’s really been eye opening and a relief to know I’m not alone.

I’ll try to post an intro thread in a few days.

Beth


#3

Hi Beth,

You are most welcome, great to hear from you!

I am sorry that it has taken you so long to receive answers. I am happy to hear that you are learning new information about Sjogrens. You are right, few people seem to understand the extent to which autoimmune diseases can impact one’s emotional, mental, and physical wellbeing. They can take such a toll on the body.

I am thinking about you and hope your symptoms are under control.

Danielle