I was wondering if any of you have found success with this particular diet?
I have been struggling with symptoms for years now, but never knew what was the culprit until 6/23/15. I was diagnosed with Sjogren's. Immediately I researched as anyone would and found this diet. I put myself on this diet, but haven't noticed any progress with my symptoms. It is supposed to take 120 days before I notice any benefits or more so I've read.
I am 29 , I have a 9 year old boy, and a boyfriend of 2+ years. I am struggling. I have tried to find local support groups, but have had no success. I was working, but because of the disease had to miss a lot of work. However at the time I wasn't aware of what was going on with my body. When I started working I took a year off from school, and started back up in school the summer right before I lost my job. I am only taking two classes now, but it is becoming more difficult to attend and complete assignments. Here lately I've wondered if I will even be able to complete this degree. Also, I've wondered if I will even be able to have this career once I do graduate.
I have only been to the Rhuematologist one time and this was before I had to terminate my insurance. I am waiting on insurance through the state so that I can make an appointment. My first visit with my doctor was depressing because she was very unsympathetic.
I've had all the symptoms pretty much and the newest of symptoms is my lung involvement. I experience shortness of breath, dry cough, and it can become painful to breathe. I feel so alone often. My boyfriend is very supportive, and I thank God for him daily. Even with him Its still difficult to express how I feel on a daily basis. At times its easier to just say, "I'm fine" and allow him to go about his day. He doesn't always have time to listen because he has a very demanding job. I have lost friends because of this diagnosis, or rather I've found out who my true friends are. I've had these expectations of my family and friends being more supportive through this, but to my surprise have not been. I cry on a regular basis because I hate feeling like I can't do even the simplest of tasks. Generally it takes until 5:00 pm for me to have any energy, and this is with me taking it easy around the house until then. I have learned that my symptoms get worse if I over due any activity. I keep telling myself that once I get on medicine it will become easier to manage, but I don't know this for sure; this is only speculation. I get so upset with myself because I'm mostly weak, and I expect to be stronger.
I suppose I'm still going through the grieving process ... :)
Welcome to the support group. There is also a group for Parents/or anyone w/Sjogens Diagnosis and Effects on Children there are only a few of us but we're always looking for more members. We toss around advice, support, or just the kiddos. Just go to groups and add a post we'll respond and we all live with the same things you are going through. You are definitely not alone in this. Don't be afraid to jump in and ask questions or join in discussions. This is a really supportive place and like I said we all live with the same thing everyday. I've tried eating totally healthy lots of fresh green & colorful veggies as well as fruits lots of protein and eating well does make me feel stronger not so weak. Also there is a great letter for your loved ones to read to better understand you it called An Open Letter To Those Without Sjogrens Syndrome. Just a thought. May help them understand a little better what you are going through. Hope this helps. Best of luck. Ann
I have been exactly where you are at this moment you wrote this. I felt like everything was falling apart. I was depressed, in pain, confused and scared. For me it was find out as much as I could about SS. I basically had to take the knowledge that I got and apply it to my everyday life. personally, I stopped any junk food, fast food, sugar, sugar drinks. I eat lots of fresh vegetables, and fruit which for me was and is a great success. I am from the south we love our grease. I take a lot of supplements, and scripts, I stay out of direct sun light. I REST as much as possible. I try every single day that I feel somewhat good to enjoy my moments. Not the day because I know I 'm not going to feel good all day but when I do I take in the moments when I get them. Everyday is struggle but it will get easier for you to manage. Ann D is right this really is a supportive place. Welcome Abbey and remember you are not alone!
Hi Abbey... you may want to take a look at The Spoon Theory also. Even if you don't share it with anyone else, it lets you know others deal with the same "rationing" of energy. And yes, this is definitely a grieving process...we are changed and have to accept a new norm but it doesn't have to be all bad. I do think it makes us more appreciative of the little joys in life.Please hang in there, keep talking to people here and know that the process gets a little easier as time goes on. Sending gentle hugs.
Oh, and my rheumatologist had told me that some diets work for some people and not for others, etc. Its about finding what works for you. The Big Three that contribute to inflammation is sugar, dairy and wheat. (That is not to say that you need to go on a gluten free diet if you don't have celiac) Just be mindful of overly processed foods, etc. Leaning towards more natural foods seems to help a lot of us. In my case, red meat and nightshades don't bother me at all (Thank Goodness for that!) but for others they are a nightmare. Once you give this diet a shot, if you decide to make other changes, remember to add or subtract foods slowly or you won't be able to tell which ones are good or bad for your system.
Thank you both for your responses!! I apologize for it taking so long to reply to “Beeb”, I’ve just haven’t felt like talking. Both of you have wonderful advice! Thank you again! ️