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Sjogren's Syndrome Support

Added Fibro to the mix


#1

So just confirmed that Inhave developed fibro also. Rheum put me back on gabapentin (which Intolerate well). I have to say it’s really helping but still… for anyone out there dealing with the two, how do you cope with both? Ugh…what a nuisance. Lol


#2

That’s frustrating. Hopefully you can get it quiet it down fairly fast.


#3

I know this won’t come close to solving anything but do you do mild yoga? I use Peggy Cappy’s “Yoga for Arthritis” because it’s not specific to “classic” arthritis. I started using it about three years ago when I kept getting recurring pain with my marathon-running phase, and in a week, it was like a magical transformation. I’ve stuck with it since - six days a week.


#4

Hey…I did yoga for a couple years but my instructor retired. I haven’t been able to find a place that works with my schedule (and financials). I will definitely look for yoga for arthritis. Thanks for the tip. Yoga really does wonders and I’ve missed it.


#5

And yes, much as I hate more meds, it really is helping.


#6

I also have fibro along with ss…its hard im on plaquenil, gabapentin, muscle relaxers, tramadol… and other meds… its really hard …


#7

The weather changes are whats getting me. And the fatigue. They both cause it so double whammy. Lol


#8

Yes it does…i have moved back to Tennessee and the winters are so harsh…oain on top of pain


#9

Yuck. LOL. Where did you move from? I am in NY so TN sounds like a dream. Ad just to add to the fun, I am going to be moving to CT so yay for even worse winters.