A very warm welcome to Susan from British Columbia



Hi there, Susan

My name is Danielle and I am a Ben’s Friends intern. I wanted to take a moment to welcome you to Sjogren’s Syndrome Support.

I can appreciate your desire to make things better. You are definitely in the right place, and I do hope you find the support and answers you are looking for in this community. In terms of dealing with a sore tongue, you are definitely not alone.

I picked out a few threads which you might find helpful. You can find more posts like these by clicking the search icon (magnifying glass, top right):

How are you managing on the site so far?

Hope to hear from you soon,



Hi Danielle - thank you for connecting with me. I am not very good with some web sites and found the Bens Friends a little confusing. I think the day my tongue was so sore I was helping with my Grandaughters graduation and got a little dehydrated. I try to always sip on a liquid but that day I was distracted which I think made matters worse. I have found there seems to be less on line support for Sjorgrens than there is for Celiac, which is upsetting.



Hi Susan,

No worries at all, it will take time to adjust to a new site. Looks like you are doing well so far!

I would start off by clicking the search icon (magnifying glass, top right) and browsing through some existing topics. This is what I used to get familiar with the site and I found it to be helpful. Please let me know if you have any questions.

Have you tried anything else besides sipping on liquids?



Yes, I have a xylimelt lozenge for night time along with Biotene spray and gel


Hi Susan,

How are the lozenges and sprays working for you? I am not very familiar with Biotene gel.



I am also doing a salt water rinse a couple of times a day and things seem to be getting better. Thank you for asking.