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Patient to patient support for people living with Sjogren's Syndrome
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Let's Keep it Nice & Clean
Does anyone suffer from debilitating migraines. I have had several over the last few weeks, this last one since last Thursday. I've been to A&E twice, and been prescribed Tramadol and Metoclopramide, these ease the intense pain and aversion to…Continue
Quick question... I am using Humira injectable every 2 weeks for S and RA. It hasn't done anything to help but I have to take it for a few more weeks before my Rheumatologist can prescribe what he thinks will work thanks to my insurance company! I…Continue
I am disabled. I was diagnosed in October with SS. I just had a surgery seven weeks ago and my Sjogrens has completely flared. There are days that I cannot leave the house. I had to hire someone to come in and go and get me food, take out my trash,…Continue
hi all!I just got out of the hospital because I started getting all of these lumps (boils maybe?) I had one area that got really bad and just sort of exploded and wouldn't stop bleeding. The doctor took a swab and said he wants to test it for mirsa?…Continue
Thank you SK hope this is the right place to write. I was wondering if anyone else is having problems with bruising of the arms and legs. I barley hit my arm or leg against something and I get a big bruise and or it tears my skin and it bleeds. …Continue
Just been diagnosed with primary Sjogrens. Apart from dry eyes and mouth also have oral Candida Albicans with chronic sores in the mouth. Have had Daktarin, Nystasin and Fluxucole but nothing is getting rid of it. Has anyone any ideas how to…Continue
I get occasional dry eye, the dry mouth seems to be ok for the moment. Dental hygiene and lots of water and Biotene seem to be helping. But there are times I wake up with a totally dried out mouth.I get horrific stabbing pains in both my thighs.…Continue
Has anyone else had cardiac involvement with SS? I ended up in ER this week with all kinds of arrhythmias. Thought initially I was having a heart attach. I am a retired RN so I don't mind you being "medical" in your discussion. Thanks .Continue
Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.
The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain.
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