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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.
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Patient to patient support for people living with Sjogren's Syndrome
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My new RA recommended that I see an ENT to observe my saliva glands. When I saw my ENT for my thyroid operation, he just concentrated on the thyroid and seemed disinterested with the whole Sjogrens aspect of my condition. Basically, he's more of an…Continue
Is anyone taking or know anything about Hydroxychloroquine?? I really don't want to take this or any medication for that matter. Having said that I have not seen this medication discussed as being used for Sjorgrens? Thank you for any information…Continue
My Sjogren's is long standing and severe, including organ damage and peripheral nerve damage. I have been prescribed Rituxin.Now, I have also been diagnosed with Crohn's - another autoimmune disease affecting the digestive system. It is very severe,…Continue
Have any of you heard or tried LDN? I've been doing a little research on it and have a friend who takes it for Hashimoto's and another autoimmune disease I cannot recall, and it has changed her life. I also joined a Facebook group called…Continue
I have been fighting fatigue all year. Been to the Rheumy a bunch, and today he took me off of all meds, and said he does not think he can do ANYTHING for me. I just want to cry. I mentioned tremors, and he wanted to send me away to a neurologist.…Continue
I'm curious about something. We are seeing wider use of this med as an analgesic for nerve pain. One of the more common effects is excess saliva proeduction. I was wondering if anyone has any experience with this med?Continue
Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.
The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain.
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