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Patient to patient support for people living with Sjogren's Syndrome
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I'm looking forward to taking off at least a layer or two of clothing, opening the windows, going to the nursery and buying some flowers and shrubs to plant with the grandkids, and being outside longer than to dash in and out of the car! What about…Continue
Just been diagnosed with primary Sjogrens. Apart from dry eyes and mouth also have oral Candida Albicans with chronic sores in the mouth. Have had Daktarin, Nystasin and Fluxucole but nothing is getting rid of it. Has anyone any ideas how to…Continue
hi all!I just got out of the hospital because I started getting all of these lumps (boils maybe?) I had one area that got really bad and just sort of exploded and wouldn't stop bleeding. The doctor took a swab and said he wants to test it for mirsa?…Continue
Does anyone suffer from burning feet at bedtime? This started for me a couple of weeks ago and I feel like I'm going nuts! (Not a far leap, ha ha!) This has several times literally kept me awake the entire night. I don't suffer the time change well,…Continue
Hi all,Just wanted to pass along a tip I learned from my Jin Shin Jyutsu practitioner for generating saliva.She told me to run my tongue counterclockwise in a circular direction along the outside of my gums and front teeth eight times, then do the…Continue
Sorry for it taking awhile to get back on this. SK had started a Sunday tea for us where we would meet in the Main Room and chat live for a bit. I was glad to see some of you interested in doing that again. I'd like to propose starting again this…Continue
Since being diagnosed witth primary Sjogrens in February this year, am still struggling with mouth infection. Ulcers which are very painful and which open and bleed. My G.P. has prescribed all the usual anti fungal meds which so far have not…Continue
Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.
The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain.
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