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Latest Activity

jonchri posted a blog post

new additional diagnosis and symtoms

Nine months ago I was diagnosed with SS. About 4 months ago it was declared Primary SS. Now my…See More
2 hours ago
jonchri commented on Shelia's blog post Problem with ears
"I was told by a doctor warm olive oil soothes ear infection pain. I would assume you could use a…"
3 hours ago
Shelia commented on Shelia's blog post Problem with ears
"Thanks everyone for the suggestions."
3 hours ago
Maureen posted a discussion

Hair Loss

Does anyone else experience hair loss during a flare?  It is extremely frustrating.See More
5 hours ago
AUjewel left a comment for Roulette67
"Welcome new friend! This group has been so helpful in many ways, especially the complementary…"
16 hours ago
AUjewel and Roulette67 are now friends
16 hours ago
Jolynn Clark left a comment for Jolynn Clark
"Thank you! ;)"
22 hours ago

SK left a comment for Jolynn Clark
"Hi Jolynn, welcome to the group! We all understand the difficulty sleeping and the fatigue, so you…"
22 hours ago


Hair Loss

Started by Maureen in General 5 hours ago. 0 Replies

Does anyone else experience hair loss during a flare?  It is extremely frustrating.Continue

Should I be seeing an ENT????

Started by Roulette67 in General. Last reply by Giulia_K yesterday. 9 Replies

My new RA recommended that I see an ENT to observe my saliva glands. When I saw my ENT for my thyroid operation, he just concentrated on the thyroid and seemed  disinterested with the whole Sjogrens aspect of my condition. Basically, he's more of an…Continue

Tags: doctors


Started by Tokio in Symptoms and Medical Treatments. Last reply by Tokio on Wednesday. 20 Replies

Is anyone taking or know anything about Hydroxychloroquine?? I really don't want to take this or any medication for that matter. Having said that I have not seen this medication discussed as being used for Sjorgrens? Thank you for any information…Continue

Help! Anyone with Sjogren's AND Crohn's?

Started by Eschnak in General. Last reply by EnjoyLife on Wednesday. 3 Replies

My Sjogren's is long standing and severe, including organ damage and peripheral nerve damage. I have been prescribed Rituxin.Now, I have also been diagnosed with Crohn's - another autoimmune disease affecting the digestive system. It is very severe,…Continue

Tags: damage, small, fiber, surgery, nerve

Low Dose Naltrexone

Started by Olive LaRue in Complementary Therapy. Last reply by Olive LaRue on Wednesday. 22 Replies

Have any of you heard or tried LDN? I've been doing a little research on it and have a friend who takes it for Hashimoto's and another autoimmune disease I cannot recall, and it has changed her life. I also joined a Facebook group called…Continue

Feeling Hopeless

Started by Mamabear in Emotional Support. Last reply by Mamabear on Wednesday. 20 Replies

I have been fighting fatigue all year. Been to the Rheumy a bunch, and today he took me off of all meds, and said he does not think he can do ANYTHING for me.  I just want to cry.  I mentioned tremors, and he wanted to send me away to a neurologist.…Continue

Neurontin/Gabapentin Experience

Started by tj1 in Symptoms and Medical Treatments. Last reply by baukje on Wednesday. 10 Replies

I'm curious about something. We are seeing wider use of this med as an analgesic for nerve pain. One of the more common effects is excess saliva proeduction. I was wondering if anyone has any experience with this med?Continue

What is Sjogren's Syndrome?


Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 


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Top Content 

1 Feeling Hopeless

Feeling Hopeless

Posted by Mamabear on April 17, 2015

2 Best eye drops?

Best eye drops?

Posted by JennaNYC on April 9, 2015

3 Hydroxychloroquine??


Posted by Tokio on April 21, 2015

4 Sjogren's symptom shock

Sjogren's symptom shock

Posted by stitchinfrenzy on March 30, 2015

5 Neurontin/Gabapentin Experience

Neurontin/Gabapentin Experience

Posted by tj1 on April 20, 2015


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Blog Posts

new additional diagnosis and symtoms

Posted by jonchri on April 25, 2015 at 11:39am 0 Comments

I hope this helps me somewhat

Posted by Roulette67 on April 24, 2015 at 3:06am 1 Comment


Posted by Roulette67 on April 21, 2015 at 11:49pm 1 Comment

Problem with ears

Posted by Shelia on April 21, 2015 at 11:17am 10 Comments

Saw my new RA

Posted by Roulette67 on April 21, 2015 at 7:51am 1 Comment

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