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Jules G.

What is Sjogren's Syndrome?

Sjögren's Syndrome is an autoimmune disease. Autoimmune diseases feature the abnormal production of extra antibodies in the blood directed against various tissues of the body, which tends to lead to inflammation. The hallmark symptom of Sjögren's syndrome is generalized dryness, typically xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), known as sicca symptoms. Sjögren's syndrome may cause skin, nose and vaginal dryness and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system or brain.

Latest Activity

Givemestrength replied to Givemestrength's discussion Lipiflow procedure for dry eyes
"I have just recently started doing the warm compresses 2 or 3 times a day and lid scrubs the last…"
17 hours ago
microkat posted a status
"My chiropractor knows more about SS than my PCP!"
21 hours ago
maggie may replied to maggie may's discussion marks on legs
"thanks for reply usagurl didnt know plaquenel caused bruising sorry you have lupus my grandmother…"
USAgurl replied to maggie may's discussion marks on legs
"I have this. Not only on my legs but on my forearms. It's hideous and very uncomfortable in…"
Mea37 is now a member of Sjogren's Syndrome Support - Online Support Group
Rae left a comment for XINA
"Hi XINA, you've found a great site to ask questions and share your feelings. I've found…"
Annie replied to Annie's discussion Polyclonal gammopathy- so what?
"Poly g present before Plaquenil."
Cherry Stoltz posted a status
"I just had/have my third bout of Epstein-Barr Virus. No pain or discomfort now but so weak and tired, I can barely think straight."


Lipiflow procedure for dry eyes

Started by Givemestrength in General. Last reply by Givemestrength 17 hours ago. 2 Replies

Has anyone ever had lipiflow done, my ophthalmologist wants me to have it done, apparently it's a procedure to clear the meibomian glands. My insurance won't cover it, it's going to cost me about $800.00. I've researched it and it seems pretty…Continue

marks on legs

Started by maggie may in What's New With You?. Last reply by maggie may yesterday. 4 Replies

does any member suffer black and blue marks on legs  without nocking them mine is terrable Continue

Tags: members

Polyclonal gammopathy- so what?

Started by Annie in General. Last reply by Annie yesterday. 6 Replies

What exactly does this mean for me? How can my immunoglobulins be up but my WBC is low? Does everyone with SS have poly G? Does it mea I'm "flaring"?


Started by EnjoyLife in What's New With You?. Last reply by Jules on Wednesday. 8 Replies

Not sure what I was thinking but we adopted a 6 month old hound from the local shelter. He is so awesome and quickly bonded to me and my son. Now I just have to get the cats on board and we'll be good to go!Just had to share that. I find myself…Continue


Started by tj1 in General. Last reply by Critter Mama on Wednesday. 4 Replies

I see we have a lot of new folks while I have been dashing about Bens friends land with lots of questions and our members are stepping forward to answer them. That's great. I'm old and while resigned to my disease despite new things constantly…Continue

Ear problems

Started by Jules in General. Last reply by allisonlovescats on Wednesday. 7 Replies

I've not been diagnosed, but have been on the site to get advice for dry sore eyes and mouth. I had an eye test today and was told the eye drops my GP has prescribed weren't any good, so has given me some suggestions to take back to him! I'm also…Continue

Trigeminal neuralgia

Started by Annie in General. Last reply by Annie on Tuesday. 2 Replies

Can anyone share their trigeminal neuralgia experience with me? Is there hope? Do you have numbness? Has anything helped it go away or stop progressing?


Started by fanny in General. Last reply by EnjoyLife on Monday. 29 Replies

Hi;Someone mentioned using Plaquenil.  Several years ago, my rheumatologist suggested to me to take Plaquenil, but I was not sure about taking it, so I declined.  Several of my other doctors after that told me that it was not a safe drug for me to…Continue

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Top Content 

1 weight loss also?

weight loss also?

Posted by CLRday on September 21, 2015

2 2 questions for you to think about

2 questions for you to think about

Posted by CLRday on September 14, 2015

3 Plaquenil


Posted by fanny on May 19, 2015

4 Puppy!!!!!


Posted by EnjoyLife on October 5, 2015

5 marks on legs

marks on legs

Posted by maggie may on October 4, 2015


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