WELCOME!!!

Welcome! You're not alone.

If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide

Patient to patient support for people living with Sjogren's Syndrome

Need a Second Opinion?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Videos

  • Add Videos
  • View All

Community Moderators

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean

1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.
 

 

Gift Store

About

 

Forum

Looking on the bright side.

Started by bigmama in General. Last reply by EnjoyLife 7 hours ago. 3 Replies

I have discovered a benefit to having SS - I chopped an entire onion and didn't shed a single tear! Of course, I have no tears to shed. Continue

Parotid pain.

Started by Cassi440 in General. Last reply by Cassi440 15 hours ago. 3 Replies

I was hit by a bad cold two days ago. I have serious pain in front and jus below the right ear. It radiates into my ear. I have had parotid swelling before and I think this is the same.I have to watch what I can take because of liver and kidney…Continue

Orencia

Started by Cassi440 in General 20 hours ago. 0 Replies

Is anyone familiar with this drug or perhaps has taken this drug?I had a long discussion with my rheumatologist about my recurring issues with joint pain and mobility. I told her that I have been on Plaquenil for 18 months and do not want to keep…Continue

Squigle toothpaste

Started by hopewell in General. Last reply by EnjoyLife 23 hours ago. 2 Replies

Hi all,I have noticed that many of you are very happy with Squigle toothpaste and was wondering if you use the fluoride variety or not.The Biotene fluoride paste just seems to be making my teeth sensitive. Or it could be over brushing, flossing and…Continue

What is Sjogren's Syndrome?

Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity


Moderator
EnjoyLife replied to bigmama's discussion Looking on the bright side.
"Hey Cassi…I know there is a big long scientific explanation but I can tell you simply that…"
7 hours ago

Moderator
EnjoyLife replied to bigmama's discussion Looking on the bright side.
"You go, girl!  We need to be able to laugh at this thing "
23 hours ago

Moderator
EnjoyLife replied to hopewell's discussion Squigle toothpaste
"I alternate between the floride/enamel saver and the sensitive teeth one. The sensitive one…"
23 hours ago
GrumpyCat liked bigmama's discussion Looking on the bright side.
23 hours ago
Kaz replied to Kaz's discussion Fibromyalgia and aerobic exercise
"Another interesting piece on Fibromyalgia and the central nervous system: Fibromyalgia: Patients…"
yesterday
Jacquied posted a status
"Hi. Today I received my results from the SJO Blood Test. I do have Sjorgren's. Thank you Community for all of your advice. My best to all..."
yesterday
Ovisaries replied to drygirl's discussion peripheral neuropathy and leflunomide
"PN sadly is common with with lots of different autoimmune diseases for lots of reasons. But year…"
yesterday
drygirl replied to drygirl's discussion peripheral neuropathy and leflunomide
"is the pn AGGRAVATED OR CAUSED BY THE COMING OFF OF PRED and the adrenals being asleep or…"
yesterday

Top Content 

1 Fatigue!!!

Fatigue!!!

Posted by Allwithlove on September 11, 2014

2 Hey just thought I would post something that I read looks like a bit of hope coming our way

Hey just thought I would post something that I read looks like a bit of hope coming our way

Added by exjbnz on September 10, 2014

3 Help with cracked lips! :(

Help with cracked lips! :(

Posted by Niki on September 2, 2014

4 Doctors' List -- who are the good ones? Please recommend

Doctors' List -- who are the good ones? Please recommend

Posted by dancermom on August 30, 2014

5 Would like some advice.

Would like some advice.

Posted by Connie on September 3, 2014

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

Join Ben's Friends

To Support SjogrensSyndromeSupport.org, Click an Ad. Or Two

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Either you can let it overwhelm you or you can keep trying to overwhelm it, the fight is yours alone

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

Hey just thought I would post something that I read looks like a bit of hope coming our way

Posted by exjbnz on September 10, 2014 at 12:12pm 8 Comments

Scientists make important breakthrough in fight against debilitating autoimmune diseases

Published on September 3, 2014 at 6:50 AM ·…

Continue

Events

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2014   Created by Ben Munoz.   Powered by

Badges  |  Report an Issue  |  Terms of Service