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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Ben's Friends Fundraiser

Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
We're probably the most efficient non profit in the world, helping 125,000 patients per month with a budget of $3k per month. But even we can't survive on $14k. 

Please donate at our super easy Donation Page at Ben's Friends . A $5 donation will make a big donation. Everything is tax deductible!

We realize most members aren't in a position to donate. Those members can help by spreading the word about the fundraiser on the communities and on Facebook. 

We need your help to keep Ben's Friends alive and going strong!
We really need your help! Please donate, even if it's $5, that will really help.

Thanks!
Scott
(Co-Founder of Ben's Friend)

Latest Activity

Angie replied to EnjoyLife's discussion Handling relationships while dealing with SS
"I agree, there are people out there who are so good at "owning" their illnesses, they are…"
1 hour ago

Moderator
EnjoyLife replied to EnjoyLife's discussion Handling relationships while dealing with SS
"I like that you had your brother tell them which gave everyone options… I wouldn't have…"
8 hours ago

Moderator
EnjoyLife left a comment for sherrydink
"Hi Sherry. Welcome. I hope you find this a great place for support and information. Feel free to…"
8 hours ago

Moderator
EnjoyLife left a comment for dora
"Hi Dora, welcome! I pass through Nashville a couple times a year. The area as a whole is very…"
8 hours ago

Moderator
EnjoyLife left a comment for Kat
"Kat, welcome to the board. I hope you find this a good place for support and information. Feel free…"
8 hours ago

Moderator
EnjoyLife left a comment for Dany Cruze
"Hi Dany. Welcome to the group. I think you will find that people here will really understand what…"
8 hours ago

Moderator
EnjoyLife left a comment for Kerrikles
"Hi Kerrikles. Welcome to the board! I'm glad you found us. I'm a bit older than you but I…"
8 hours ago
Kat is now a member of Sjogren's Syndrome Support - Online Support Group
8 hours ago

Forum

Handling relationships while dealing with SS

Started by EnjoyLife in General. Last reply by Angie 1 hour ago. 3 Replies

As a relatively newly divorced 40-something, I am dealing with a new dilemma... when do you tell new people in your life about this. What do you tell them and how much? I occurred to me that others may have the same issues.I don't just mean with new…Continue

Sjö Test for Sjogrens

Started by tj1 in General. Last reply by EnjoyLife yesterday. 4 Replies

I haven't seen much mention of this test but thought it may be worth bringing up. Nicox recently announced that it has partnered with Immco Diagnostics to promote a proprietary laboratory, called the Sjöe test for early detection of Sjögren’s…Continue

Nerve Pain and results

Started by Marc in General. Last reply by Rosen on Thursday. 6 Replies

I would like to get some advice as I continue to be very concerned. My sediment rate was low (4) , SSA SSB, ANA all were negative but had a high RA factor.   My eye test was a 10 in one eye and 5 on the other.    The eye doctor thought my eyes…Continue

Feeling confused, frustrated and a bit down...

Started by Disneygirl in General. Last reply by Pattybabe on Thursday. 30 Replies

Hi everyone!  I'm new to the group and look forward to getting to know everyone and learning from & sharing our experiences with Sjorgren's. As I mentioned in my profile I received a positive ANA and SSB a few months ago, which is the first time…Continue

Hobbies Music, Pets

Started by purplebutterfly in General. Last reply by EnjoyLife on Thursday. 9 Replies

Hello everyone.Sometimes we become so ill or so caught up in our illnesses we forget other things. I was looking at the subgroups we have an would like to see what we all like and invite you to look at the groups. Continue

Tags: music, pets, groups

Take charge!

Started by lisa 123 in General. Last reply by Stoney on Wednesday. 1 Reply

Morning everyone, I know I'm new here but I have read so much regarding lack of the help from doctors. I seen 7 doctors last year, the one that has been beneficial to me is my internal med dr and natural path. I drive the IM one crazy, but he said…Continue

Mucus Pinapple Juice

Started by Mary in General. Last reply by EnjoyLife on Wednesday. 3 Replies

I was told by a friend, who has a boyfriend  who has a problem due to the condition he has with mucus chocking him by trickling down his throat.  It was suggested to him that he takes a few mouth fulls of pineapple juice as this will solve the…Continue

Does anyone get muscle "twitching" or "jerking"?

Started by Gatewaycityca in General. Last reply by beautifulSC on Tuesday. 14 Replies

One of the more scary symptoms I've been noticing for about maybe a month now is that randomly I'll get a twitching or kind of jerking in different parts of my body.  If I'm sitting down and watching tv, or playing on the computer, or reading I'll…Continue

What is Sjogren's Syndrome?

 

Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 

 

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Top Content 

1 Feeling confused, frustrated and a bit down...

Feeling confused, frustrated and a bit down...

Posted by Disneygirl on January 25, 2015

2 Rutuximab

Rutuximab

Posted by Country girl on January 24, 2015

3 Looking for a Sjogrens doctor near East Bay California

Looking for a Sjogrens doctor near East Bay California

Posted by misslynne on January 8, 2015

4 Autologous Serum Eye Drops Safe, Effective for Dry Eyes

Autologous Serum Eye Drops Safe, Effective for Dry Eyes

Posted by Kaz on December 20, 2014

5 Reflection

Reflection

Posted by purplebutterfly on January 19, 2015

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

“Either you can let it overwhelm you or you can keep trying to overwhelm it, the fight is yours alone”

Blog Posts

Skin Problems.

Posted by Ruthie on January 27, 2015 at 5:25am 3 Comments

That was a rough one

Posted by Angie on December 29, 2014 at 5:49am 2 Comments

Sometimes you gotta laugh at yourself

Posted by Angie on December 8, 2014 at 3:23am 6 Comments

Received elevated Liver enzymes

Posted by MIMI on November 28, 2014 at 7:46am 12 Comments

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