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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.
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Patient to patient support for people living with Sjogren's Syndrome
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"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.
The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain.
Hi everyone, im just curious to know if there are alot of patients with this disease and also lupus, that take a daily steroid along with the daily Plaquinel ? I take prednisone 5 to 10 mgs a day and without it i feel ten times worse..
Ben Munoz and Ben's Friends Patient Communities were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.…Continue
Please tell us at least one POSITIVE that happened to you this day. It can be any wonderful action or event, an inspiring thought that came across your mind, an exciting emotion, or a nice sight, smell or taste or feelings. ONLY POSITIVE, NO…Continue
Was wondering if any other members here have had PsA for awhile and then developed Sjogren's Syndrome years later? That is what's happened with me, diagnosed PsA sufferer for 3 years now (was ANA positive then too but the reason for the positive…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Posted by Niki on February 26, 2014
Posted by nofrumping on February 8, 2014
Posted by JMU on March 3, 2014
Posted by Armando on March 5, 2014
Posted by nofrumping on February 23, 2014