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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.


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Quality of life

Started by Hollydoodle in General. Last reply by SK 1 hour ago. 17 Replies

I feel like my quality of life is questionable to nil. This disease has progressed very rapidly in my body and it's getting depressing. Today was the first day I have gone out of the house in at least a week. We went to church and were going to do…Continue

Telemedicine Patient Education

Started by Ben Munoz in General. Last reply by EnjoyLife 1 hour ago. 3 Replies

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting.  The survey is about Telemedicine Sessions for Patient Education.   If you are interested the link is here …Continue

There will be a live chat today here in the main room starting about 2:30 or 3:00 EST! Everyone welcome!

Started by SK in General. Last reply by EnjoyLife 2 hours ago. 2 Replies

Just click on the 'main room at bottom right of screen, place your cursor in the bottom box, type greeting or response and then click 'enter' on your computer key!This was a great idea of Qadosh (Cynthia) and hopefully everyone will join in and get…Continue


Started by Scott Orn in General. Last reply by SK 10 hours ago. 2 Replies

Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my nonprofit) received $52 from Amazon Smile our 1st month…Continue

What is Sjogren's Syndrome?

Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 

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Latest Activity

SK left a comment for Stephanie
52 minutes ago

SK replied to Hollydoodle's discussion Quality of life
"I agree EnjoyLife,  Grab the good while it's there, even if you wanted more, be glad for…"
1 hour ago

EnjoyLife replied to Ben Munoz's discussion Telemedicine Patient Education
"This could be a good door for you, if it gives you easier access to docs in other countries,…"
1 hour ago

Scott Orn left a comment for lildixie92
"Hi lildixie92 -  Huge welcome to the community! This is a great place! One tip, if you have…"
1 hour ago

Scott Orn left a comment for poohpenny
"Hi Poohpenny - Huge welcome to the community! This is a great place! One tip, if you have specific…"
1 hour ago

EnjoyLife replied to SK's discussion There will be a live chat today here in the main room starting about 2:30 or 3:00 EST! Everyone welcome!
"Unless I'm mistaken I think we are aiming to do this every Sunday. Its wonderful to talk…"
2 hours ago

EnjoyLife replied to Hollydoodle's discussion Quality of life
"SK… been wondering how you are. We missed you Sunday. I really like your Bohemian Bud's…"
2 hours ago

SK left a comment for poohpenny
"Welcome poohpenny! We're glad to have you with us! Please feel at home to join in the…"
2 hours ago

Top Content 

1 Boost Your Immune System?

Boost Your Immune System?

Posted by Kim on August 19, 2014

2 Waiting on docs diagnosis

Waiting on docs diagnosis

Posted by Misbea711 on August 17, 2014

3 The Slow Track

The Slow Track

Posted by Qadosh2him on August 14, 2014

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Nystatin oral suspension problem

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5 Look who I had dinner with tonight!

Look who I had dinner with tonight!

Posted by dancermom on August 6, 2014


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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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Either you can let it overwhelm you or you can keep trying to overwhelm it, the fight is yours alone


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Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 10:14pm 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…




BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

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