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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Ben's Friends Now a Non-Profit 501(c)(3) Organization

This enables all donations to be tax deductible (starting with any made from July 2013), makes us eligible for corporate donations and matching gifts, and gives us access to grants and foundations (dramatically widening our donor pool), and provides benefits reserved for nonprofits (such as Google Ads credits).
This status will help us realize our ultimate goal - to ensure everyone affected by a rare disease has a safe place to go (our communities!) to connect with someone like them.
Thank you, Members and Moderators, for hanging in there with us and never wavering as we went through this difficult process. Now the real work can begin!
If anyone has any ties to grants, foundations, or partners who can help 501(c)(3) organizations, or if you have any past experience writing grant applications, please email us at partners@bensfriends.org

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Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

What is Sjogren's Syndrome?

Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 

Forum

Fatigue

Started by Kate in General. Last reply by Nomad 2 hours ago. 11 Replies

I am struggling with fatigue.  Any ideas?What I am taking and trying so far:NO sugar for 5 monthsGreen juiceOmega 3 everydayAppreciate :))Continue

Meltdown......anybody had one?

Started by Kayrn in General 3 hours ago. 0 Replies

....because I really feel like that is where I am headed. I realize this isn't really a "topic", but I needed a place to vent for a moment. I have had several different symptoms pop up since December, and I have been to 3 specialists and my…Continue

Telehealth, for those in remote areas, new video just added.

Started by SK in General. Last reply by mcspires 5 hours ago. 3 Replies

Here is a resource for those who are not near to a specialist. This was a link from the Arthritis Today magazine!  Hope it helps someone!http://www.telehealthresourcecenter.org/must see video!…Continue

Latest Activity

Nomad replied to Kate's discussion Fatigue
"I use my preservative free eye drops that come in individual containers several times a day and…"
2 hours ago
USAgurl replied to SK's discussion Why expeller pressed, and cold pressed cooking oils are so much more beneficial!
"This also applies to corn syrup which is extracted from corn, (even the leaves) by using …"
3 hours ago
Kayrn posted a discussion

Meltdown......anybody had one?

....because I really feel like that is where I am headed. I realize this isn't really a "topic",…See More
3 hours ago
USAgurl liked SK's discussion Why expeller pressed, and cold pressed cooking oils are so much more beneficial!
3 hours ago
mcspires replied to SK's discussion Telehealth, for those in remote areas, new video just added.
"I am excited for the new digital advances in medicine.  Living in Wyoming, we do not have…"
5 hours ago
Della replied to SK's discussion The two types of Sjogren's Syndrome, Anyone been told which kind they have?
"Thank you. "
5 hours ago
mazbeach replied to SK's discussion Why expeller pressed, and cold pressed cooking oils are so much more beneficial!
"Thank you.  I knew I was doing something right.  My wife suffers horribly and anything I…"
6 hours ago
Kaz replied to SK's discussion Telehealth, for those in remote areas, new video just added.
"That video was very interesting. However, there are aspects that do worry me. For a start he is…"
11 hours ago

Top Content 

1 Are we underestimating the impact Sjogren's is having on our health?

Are we underestimating the impact Sjogren's is having on our health?

Posted by SK on March 29, 2014

2 Fatigue

Fatigue

Posted by Kate on April 16, 2014

3 Talk to me about Plaquenil, please!

Talk to me about Plaquenil, please!

Posted by SK on April 8, 2014

4 How long did it take you to get a diagnosis, or are you still waiting?

How long did it take you to get a diagnosis, or are you still waiting?

Posted by SK on April 6, 2014

5 Weird ways your body speaks to you

Weird ways your body speaks to you

Posted by lilacs on April 14, 2014

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Either you can let it overwhelm you or you can keep trying to overwhelm it, the fight is yours alone

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Blog Posts

I saw the rhematologist today

Posted by Roxy on April 17, 2014 at 10:53am 2 Comments

I saw the rheumatologist today. The results of the tear production tests show that I have decreased production in one eye and the other eye is normal. I have mild dryness on the corneas. The salivary gland biopsy is normal; however so many of my…

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