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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.


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Latest Activity

Bones replied to Bones's discussion Migraines
"Thanks everyone, I'm sort of lucky by not being in paid employment, but do a lot of…"
33 minutes ago
TL replied to TL's discussion Humira question
"Hi SK, I went to the Ready Clinic on Sunday because I felt like I was getting worse and sure enough…"
44 minutes ago
ggrhea replied to Bones's discussion Migraines
"I've been getting them more frequent nothing seems to help I have to stay in bed until gone…"
1 hour ago
AUjewel replied to QueenJewel's discussion Is anyone else totally disabled from SS?
"I too am disabled, having to retire much earlier than planned. I have SS, RA, lupus, fibromyalgia…"
2 hours ago
QueenJewel posted a discussion

Is anyone else totally disabled from SS?

I am disabled. I was diagnosed in October with SS. I just had a surgery seven weeks ago and my…See More
3 hours ago
mcspires replied to Bones's discussion Migraines
"Dear Bones, So very sorry to hear you are having these headaches!  I have headaches, but they…"
7 hours ago
Giannas replied to Angie's discussion Another new symptom?
"I can't get rid of the above post with all the mistakes. Prednisone leaves you open to get…"
12 hours ago
Giannas liked Angie's discussion Another new symptom?
12 hours ago



Started by Bones in General. Last reply by Bones 33 minutes ago. 4 Replies

Does anyone suffer from debilitating migraines. I have had several over the last few weeks, this last one since last Thursday. I've been to A&E twice, and been prescribed Tramadol and Metoclopramide, these ease the intense pain and aversion to…Continue

Humira question

Started by TL in General. Last reply by TL 44 minutes ago. 7 Replies

Quick question... I am using Humira injectable every 2 weeks for S and RA. It hasn't done anything to help but I have to take it for a few more weeks before my Rheumatologist can prescribe what he thinks will work thanks to my insurance company! I…Continue

Tags: Medication

Is anyone else totally disabled from SS?

Started by QueenJewel in Emotional Support. Last reply by AUjewel 2 hours ago. 1 Reply

I am disabled. I was diagnosed in October with SS. I just had a surgery seven weeks ago and my Sjogrens has completely flared. There are days that I cannot leave the house. I had to hire someone to come in and go and get me food, take out my trash,…Continue

Another new symptom?

Started by Angie in General. Last reply by Giannas 12 hours ago. 3 Replies

hi all!I just got out of the hospital because I started getting all of these lumps (boils maybe?) I had one area that got really bad and just sort of exploded and wouldn't stop bleeding. The doctor took a swab and said he wants to test it for mirsa?…Continue

Thin Skin

Started by susieq in General. Last reply by USAgurl 15 hours ago. 4 Replies

Thank you SK hope this is the right place to write.  I was wondering if anyone else is having problems with bruising of the arms and legs.  I barley hit my arm or leg against something and I get a big bruise and or it tears my skin and it bleeds. …Continue

Newly diagnosed

Started by Gina in General. Last reply by poohpenny 19 hours ago. 2 Replies

Just been diagnosed with primary Sjogrens.  Apart from dry eyes and mouth also have oral  Candida Albicans with chronic sores in the mouth.  Have had Daktarin, Nystasin and Fluxucole but nothing is getting rid of it.  Has anyone any ideas how to…Continue

My symptoms, so far

Started by Roulette67 in Symptoms and Medical Treatments. Last reply by EnjoyLife 21 hours ago. 4 Replies

I get occasional dry eye, the dry mouth seems to be ok for the moment. Dental hygiene and lots of water and Biotene seem to be helping. But there are times I wake up with a totally dried out mouth.I get horrific stabbing pains in both my thighs.…Continue

Cardiac involvement

Started by Snowflake in General. Last reply by TweetyGirl yesterday. 15 Replies

Has anyone else had cardiac involvement with SS?  I ended up in ER this week with all kinds of arrhythmias.  Thought initially I was having a heart attach.  I am a retired RN so I don't mind you being "medical" in your discussion.  Thanks .Continue

What is Sjogren's Syndrome?


Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 


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Top Content 

1 My teeth are falling apart!

My teeth are falling apart!

Posted by Tessa on February 15, 2015

2 diagnosis


Posted by teresa on February 9, 2015

3 Bronchitis / sinusitis frequency and prevention

Bronchitis / sinusitis frequency and prevention

Posted by Nomad on February 21, 2015

4 Cardiac involvement

Cardiac involvement

Posted by Snowflake on February 28, 2015

5 Newly diagnosed

Newly diagnosed

Posted by purplebutterfly on February 10, 2015


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Blog Posts

Today is bad

Posted by Roulette67 on March 3, 2015 at 3:47am 0 Comments


Posted by Roulette67 on March 2, 2015 at 8:20am 0 Comments

Newly diagnosed!

Posted by Kat on February 1, 2015 at 3:04pm 4 Comments

Skin Problems.

Posted by Ruthie on January 27, 2015 at 5:25am 6 Comments

That was a rough one

Posted by Angie on December 29, 2014 at 5:49am 2 Comments

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