Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4.Join or Create a Group

Check our Help tab above.


Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.

To change your username, click here. 


All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.


Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.


Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Jules G.

What is Sjogren's Syndrome?

Sjögren's Syndrome is an autoimmune disease. Autoimmune diseases feature the abnormal production of extra antibodies in the blood directed against various tissues of the body, which tends to lead to inflammation. The hallmark symptom of Sjögren's syndrome is generalized dryness, typically xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), known as sicca symptoms. Sjögren's syndrome may cause skin, nose and vaginal dryness and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system or brain.

Latest Activity

newcreation replied to maggie may's discussion fatique
"Maggie....my chronic fatigue is life changing....i do what I can and organize what needs…"
5 hours ago
janhojo posted a discussion


I was diagnosed with sjogrens about a year ago. Had all kinds of symptoms which doctors ignored…See More
6 hours ago
Bels replied to maggie may's discussion fatique
"Hi Maggie May, It's very coincidental to see your post today.  I woke up with incredible…"
6 hours ago
Ann D liked maggie may's photo
10 hours ago
Mimi posted a status
"I am very dry!"
10 hours ago
Ann D liked maggie may's photo
10 hours ago
Ann D liked maggie may's photo
10 hours ago
Ann D replied to Kat August's discussion Sjogrene Syndrome
"Kat,  I'm right there with you. My pcp is an idiot I'm educating her. We battled…"
10 hours ago



Started by maggie may in New Member Checkin. Last reply by newcreation 5 hours ago. 3 Replies

how do  u all manage to cope with chronic fatique that last for daysContinue


Started by janhojo in General 6 hours ago. 0 Replies

I was diagnosed with sjogrens about a year ago. Had all kinds of symptoms which doctors ignored except for my eye doctor who said that something was going on because of my severe dry eye. Now recently I was told after an echocardiogram that I have a…Continue

Sjogrene Syndrome

Started by Kat August in General. Last reply by Ann D 10 hours ago. 6 Replies

Has anyone with this SS , ever just want to throw in the towel and say WTF.. Its like my doctor i feel don't really know what the hell he is dealing with ,but he just loves giving me more and more drugs.. Does anyone want to do that..? or what about…Continue

Hi, I'm New

Started by newcreation in New Member Checkin. Last reply by newcreation 13 hours ago. 9 Replies

Hi everyone I am new to this site, and am encouraged to have support..I was diagnosed with sjogrens about 7 yrs ago.  But for 15 yrs severe migraines, fibromyalgia, chronic fatigue, poor memory and concentration. I take prophalactic meds for…Continue

Constipation: Possible Solution

Started by Ann D in General. Last reply by susie on Friday. 5 Replies

A subject many of us may not feel comfortable discussing. I personally don't suffer from this but have a few friends that do due to pain medications mostly. One of them takes an over the counter med. Senakot. The other gets Senna leaves which is…Continue

Questions about Lymphoma

Started by Gatewaycityca in General. Last reply by A Mom on Spin on Tuesday. 5 Replies

I have read in several places that people with Sjogren's Syndrome have a much higher chance of getting Non-Hodgins Lymphoma.  I've seen varying odds, with some sources saying between 5-10 percent, and others slightly higher or lower.  My…Continue

Losing it in the house of God

Started by Yessi in What's New With You?. Last reply by Ann D Aug 23. 24 Replies

         I've been dealing with a lot, Single Mother, Main Provider and Sick...So I've been trying to find a church closer to my home because my original church is 40 min away and that's exhausting for me, plus its frustrating for my 1 1/2  yr old…Continue

Johns Hopkins Sjogrens clinic

Started by runrx in General. Last reply by runrx Aug 23. 29 Replies

Hi. My Dr is sneding me to JH to see the doc at their clinic that is both a Rheumatologist and a neurologist. Has anyone else been to their clinic? Any advice on how they do things there?

Mobile App

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Top Content 

1 Blood in Urine?? Could this be caused by Plaquenil?

Blood in Urine?? Could this be caused by Plaquenil?

Posted by Roulette67 on July 10, 2015

2 More than a flare

More than a flare

Posted by Parched on August 14, 2015

3 Losing it in the house of God

Losing it in the house of God

Posted by Yessi on August 6, 2015

4 Plaquenil


Posted by Ann D on August 1, 2015

5 One diagnosis after another....feeling down

One diagnosis after another....feeling down

Posted by misslynne on August 15, 2015


© 2015   Created by Ben Munoz.   Powered by

Badges  |  Report an Issue  |  Terms of Service