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Jules G.

What is Sjogren's Syndrome?

Sjögren's Syndrome is an autoimmune disease. Autoimmune diseases feature the abnormal production of extra antibodies in the blood directed against various tissues of the body, which tends to lead to inflammation. The hallmark symptom of Sjögren's syndrome is generalized dryness, typically xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), known as sicca symptoms. Sjögren's syndrome may cause skin, nose and vaginal dryness and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system or brain.

Latest Activity

Stoney replied to · Lisa D ·'s discussion Prednisone and other corticosteroids
"As a reminder, long term use of prednisone can have some serious side effects, and the use of it…"
23 hours ago
Aunt J replied to · Lisa D ·'s discussion Prednisone and other corticosteroids
"The prednisone has helped brain fog, but still have the buzzing in my head. my glands still swell…"
Catherine replied to · Lisa D ·'s discussion Prednisone and other corticosteroids
"l'm on 50mg of  prednisone a day with other meds.  l feel like my body has been…"
Aunt J replied to · Lisa D ·'s discussion Prednisone and other corticosteroids
"I started prednisone in April when my blood platelets were down to 60. I have glaucoma also so make…"


Prednisone and other corticosteroids

Started by · Lisa D · in Symptoms and Medical Treatments. Last reply by Stoney 23 hours ago. 24 Replies

Just curious, have you taken a steroid other than Prednisone?1) what drug was it?2) pro's: what benefit did/does it give you?3) con's: what side effects/problems did you have on the medication?Thank you so much for any input.L.D.…Continue

Tags: corticosteroids, medication

Our stories are important. Will you share yours?

Started by Jules in General. Last reply by EnjoyLife on Wednesday. 3 Replies

Our stories are important. Will you share yours? Ben's Friends is made possible by generous donors who help pay for the costs of maintaining our network. They share with us, and we would like to share your story with them. Post what Ben's Friends…Continue

Schleral Lenses

Started by Nicole Wagner in Symptoms and Medical Treatments. Last reply by Nicole Wagner Nov 16. 4 Replies

Has anyone had any luck with Scleral Lenses?  I have been wearing Ziena Moisture Chamber glasses daily for almost 3 months now. They seem to be the best on the market in terms of style, but I feel like Velma from Scooby Doo. The lenses are pricey…Continue

Tags: Lenses, Contact, Scleral

New member's rambling introduction

Started by Xochitl in New Member Checkin. Last reply by Fancy N Nov 15. 6 Replies

Hi. My family opthamologist suggested SS when I saw her for dry eyes and she saw me guzzling water. She sent me for a few blood tests which came back positive (except the SSA and SSB antibodies) and sent me to a my local Johns Hopkins rheumatologist…Continue

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Top Content 

1 Past post on hearing loss

Past post on hearing loss

Posted by Lovemyboxers on October 31, 2015

2 Our stories are important. Will you share yours?

Our stories are important. Will you share yours?

Posted by Jules on November 13, 2015

3 Up side to ss

Up side to ss

Posted by Miss Kiwi on November 1, 2015

4 Prednisone and other corticosteroids

Prednisone and other corticosteroids

Posted by · Lisa D · on July 26, 2015

5 Dental work

Dental work

Posted by Lovemyboxers on October 31, 2015


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