Sjogren's Syndrome Support
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Sjögren's Syndrome is an autoimmune disease. Autoimmune diseases feature the abnormal production of extra antibodies in the blood directed against various tissues of the body, which tends to lead to inflammation. The hallmark symptom of Sjögren's syndrome is generalized dryness, typically xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), known as sicca symptoms. Sjögren's syndrome may cause skin, nose and vaginal dryness and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system or brain.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them
General Discussion about topics related to Sjogren's Syndrome
A Newbies Guide to Sjogrens Syndrome
We know you have a million questions. This section is to help you answer a few. Please don’t hesitate to ask your questions though. These are short articles written by experienced Sjogrens patients on range of topics for the newly diagnosed or those in process of being diagnosed. They are not highly technical, we leave that to others nor are they intended to be all-inclusive. We will be adding more so please come back often.
New Member Checkin
If you are a new member, sign in and say, "Hi," introduce yourself, and share your story. We are a group of fellow Sjogrens sufferers, who are all in pursuit of improving our lives and better controlling our disease. We have all become friends and partners. Start your forum experience here.
Symptoms and Medical Treatments
What are your symptoms? and what has your doctor prescribed for them?
What's New With You?
How have you been? We would like to hear.
If you would like to express your feelings about dealing with Sjogren's, this is the place?
Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with Sjogrens. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture to nourishing our bodies, minds, and spirits. For some, treatment of the disease means more than evidence based medication alone - this is the place to discuss healing modalities that can complement medical treatment.
Recommend a Doctor, Therapist, or Clinic (Positive
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
Sjogrens Articles, News and Research
This is the place to post links to scientific readings which enhance our understanding of Sjogrens and treatments for it. Not all the articles listed here have their roots in evidence-based research, nor have they been directly or indirectly peer-reviewed. Even peer-reviewed and evidence-based, articles and even studies don't always represent "fact". Articles and studies are largely the way scientists communicate ideas and opinions. They are a great basis for discussion and learning but rarely should they be the basis for medical decisions. If you post a link, please state the topic of the article in the subject line. If you are posting more than one article, make separate posts for each.
An archive of member Blogs from the old site
Member Photos and videaos
How to get started in Chat
Hurray, we can chat! This is a private chat only visible to registered users of Sjogren's Syndrome Support. Please use your screen name when you chat
Discussion about this site, its organization, how it works, and how we can improve it.
FAQ about the Sjogrens Syndrome Support Community
Bens Friends Apps for mobile Devices
Bens Friends Apps for mobile Devices