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If your family has been affected by Sjogren's Syndrome, consider Sjogren's Syndrome Support Network your second home.


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Latest Activity

Giulia_K liked Mamabear's discussion Multiple appointments - just going to the appointments is going to wear me out!
1 hour ago
Giulia_K replied to SK's discussion Now that the weather is beginning to warm, what have you been looking forward to doing?
" Hi EnjoyLife, thank you so much :) Giulia"
1 hour ago
Giulia_K replied to SK's discussion Now that the weather is beginning to warm, what have you been looking forward to doing?
"Hi Mamabear, thank you for your kind words... Yes, that's Venice.  I took that photo some…"
1 hour ago

EnjoyLife replied to SK's discussion Now that the weather is beginning to warm, what have you been looking forward to doing?
"Wow....gorgeous picture."
2 hours ago

EnjoyLife replied to Mamabear's discussion Coconut oil
"That's too funny.... like one of the kids I babysat for when I was young. He kept pestering…"
2 hours ago
confused and aa5261 are now friends
3 hours ago
confused liked Mamabear's discussion Multiple appointments - just going to the appointments is going to wear me out!
3 hours ago
Mamabear's discussion was featured

Multiple appointments - just going to the appointments is going to wear me out!

Tomorrow, I am going to an intro to yoga class.  On Monday, I go and see the…See More
3 hours ago


Now that the weather is beginning to warm, what have you been looking forward to doing?

Started by SK in General. Last reply by Giulia_K 1 hour ago. 11 Replies

I'm looking forward to taking off at least a layer or two of clothing, opening the windows, going to the nursery and buying some flowers and shrubs to plant with the grandkids, and being outside longer than to dash in and out of the car! What about…Continue

Coconut oil

Started by Mamabear in General. Last reply by EnjoyLife 2 hours ago. 16 Replies

What do you use it for?

Newly diagnosed

Started by Gina in General. Last reply by Lovey 21 hours ago. 9 Replies

Just been diagnosed with primary Sjogrens.  Apart from dry eyes and mouth also have oral  Candida Albicans with chronic sores in the mouth.  Have had Daktarin, Nystasin and Fluxucole but nothing is getting rid of it.  Has anyone any ideas how to…Continue

Another new symptom?

Started by Angie in General. Last reply by SK yesterday. 13 Replies

hi all!I just got out of the hospital because I started getting all of these lumps (boils maybe?) I had one area that got really bad and just sort of exploded and wouldn't stop bleeding. The doctor took a swab and said he wants to test it for mirsa?…Continue

Burning feet at night

Started by Lovey in General. Last reply by SK yesterday. 13 Replies

Does anyone suffer from burning feet at bedtime? This started for me a couple of weeks ago and I feel like I'm going nuts! (Not a far leap, ha ha!) This has several times literally kept me awake the entire night. I don't suffer the time change well,…Continue

Quick Method for Generating Some Saliva

Started by A Mom on Spin in Complementary Therapy. Last reply by Roulette67 on Wednesday. 4 Replies

Hi all,Just wanted to pass along a tip I learned from my Jin Shin Jyutsu practitioner for generating saliva.She told me to run my tongue counterclockwise in a circular direction along the outside of my gums and front teeth eight times, then do the…Continue

Tags: saliva, Jyutsu, Shin, Jin

Sunday Chat!

Started by EnjoyLife in General. Last reply by EnjoyLife on Sunday. 18 Replies

Sorry for it taking awhile to get back on this. SK had started a Sunday tea for us where we would meet in the Main Room and chat live for a bit. I was glad to see some of you interested in doing that again. I'd like to propose starting again this…Continue

Finding the right medic

Started by Gina in General. Last reply by Kaz Mar 21. 9 Replies

Since being diagnosed witth primary Sjogrens in February this year, am still struggling with mouth infection.  Ulcers which are very painful and which open and bleed.  My G.P. has prescribed all the usual anti fungal meds which so far have not…Continue

What is Sjogren's Syndrome?


Sjögren's Syndrome is an autoimmune disease characterized by dryness of the mouth and eyes. Autoimmune diseases feature the abnormal production of extra antibodies in the blood that are directed against various tissues of the body. The misdirected immune system in autoimmunity tends to lead to inflammation of tissues.

The hallmark symptom of Sjögren's syndrome is a generalized dryness, typically including xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), part of what are known as sicca symptoms. Sicca syndrome also incorporates vaginal dryness, chronic bronchitis and lacks signs of arthritis. Sjögren's syndrome may cause skin, nose and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. 


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Top Content 



Posted by aa5261 on March 8, 2015

2 Cardiac involvement

Cardiac involvement

Posted by Snowflake on February 28, 2015

3 Migraines


Posted by Bones on March 4, 2015

4 Burning feet at night

Burning feet at night

Posted by Lovey on March 14, 2015

5 Thin Skin

Thin Skin

Posted by susieq on March 2, 2015


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Blog Posts

Getting use to things

Posted by Roulette67 on March 25, 2015 at 8:43am 6 Comments


Posted by Roulette67 on March 13, 2015 at 6:15pm 4 Comments

Gluten Free diet works!!!

Posted by Dany Cruze on March 13, 2015 at 7:13am 3 Comments

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